Archive for September, 2011

Laughing in Heaven
September 28, 2011

Several times over the past week or so, I have made reference to a friend who was just recently diagnosed with cancer. We’ve just learned that he passed away this afternoon.

I HATE cancer!! I know there are many other diseases that affect people’s lives, but why does it seem that every time I turn around, someone I know…someone I care about…finds out that they have cancer. Cancer hurts. Cancer kills. Cancer takes the lives of people in their prime…even the lives of children who have not even reached their prime. What is it going to take to find a cure for cancer?

What a good person he was. What a great guy! And, what a sense of humor…a bit warped, at times, but he so loved to make others laugh. I understand about him being “in a better place”. I get that. But that doesn’t take away the pain that his absence leaves in this place. The frailty of life just jumps up and slaps you in the face at times like these.

I HATE cancer…not just for myself but for all of the others out there who have been and are currently affected by it. I encourage every one of you reading this post tonight to hug the one you’re with. Treasure your life and the lives of your loved ones. There is not one of us who knows what tomorrow will bring.

I HATE cancer!! But, I am able to smile through it, thinking about all of the people in heaven who are listening to my friend tonight and rolling in the aisles. RIP, Steve. And God bless all of those you have left behind.

Later.

The Way the Ball Bounces
September 26, 2011

Previously on Beyond Cathy’s Tunnel

I was just so tired of handling the ball, I knew I had to pass it to Dr. D. As soon as I did, I could tell that we would continue handling this ball – at least for a while. Anyone who knows me well knows that I am not a sports fan. So, it was a huge relief to me to pass the ball to his court and let him take over the ball handling. He will be scheduling a bone scan within the next week or two and it will either show something or it won’t.(excerpt from 8/29 blog post entitled The Ball)

That was back on August 29. I had the bone scan on September 12 and today, 4 weeks after that appointment, the wait is finally over. I have to say that waiting for 3:00 today almost seemed more difficult than waiting for the previous 4 weeks to pass. I arrived at the Cancer Center shortly before 3:00 and went back to get my blood drawn. When I finished, I returned to the reception area and was scanning the absolutely packed waiting room for a place to sit when I spied Ken sitting there. He used to go to every Cancer Center appointment with me, but since I finished chemo I have been flying solo. He was so upset about the possible results of the bone scan, however, that he drove down to wait with me. That was very comforting.

We had gone to Omaha over the week-end…Ken, Keisha, Michelle and I…and what a great diversion. The weather was beautiful, we had a lovely room and great company. We did lots of shopping, plenty of eating and just enjoyed spending time together. I caught myself thinking ahead to today a few times but not too bad. I found myself trying to memorize scenes, capture colors and photograph moments in my mind. For the most part though,  I was able to just enjoy the trip and forget about the “what ifs”. But, all too soon, the week-end came to an end and next thing I knew the alarm was going off. Time to get up and greet the day…possibly my last day of innocence, so to speak. Today, I would know the verdict.

So, as I said. I arrived at the Cancer Center shortly before 3:00. My appointment was scheduled for 3:00. We finally got called back to see the doctor at 5:20. How do you spell i-n-t-e-r-m-i-n-a-b-l-e? Dr. D. walked in and following the “Good afternoon, thanks for waiting.  the Mr. Stueve, long time no see. and the Mrs. Stueve, how are you doing today?” he announced that the bone scan was clear. That’s right. No cancer. Ken almost came straight up out of his chair and I don’t think I have stopped smiling since.  I continue to have weight loss issues, however, which mystifies him, so he does want me to have another PET scan. It’s been nearly a year since my last one. He also suggested referring me to Mayo Clinic. That was an opportunity which I declined.

However…I will have a PET scan sometime within the next several weeks. I’m also scheduled for a mammogram. That will take me up to my 2 year Cancerversary. Can you believe it? At that point, Lord willing, we should be able to finally relax.

Next up…appointment with the retina specialist. Tuesday, October 4. And, that’s a concern of a different color.

Later.

Ginseng
September 19, 2011

Started my day at the Cancer Center. It was my exit interview for the Ginseng Clinical Trial. Same basic questions as always and then some time to just chat with my research administrator. We were discussing the fact that in just 4 week I was able to notice a difference in my energy level and I said it would have really been interesting to have been in the original Ginseng group rather than the placebo group. I asked what types of results she had seen from those participants. She said she hadn’t had any. I don’t think there have been many at June E. Nylen who participated but you would think that someone would have ended up in the Ginseng group. Anyway, she also said that the study had been suspended early because the 100% Wisconsin Ginseng is in such short supply. She was not aware of anyplace that I could just purchase it to continue. HOWEVER…

Just moments ago, I received an email link from her for the Wisconsin Ginseng Board. It had information on the site and also a link to a distributor. I have just completed an online purchase of two more bottles of Ginseng. HOPEFULLY, the order will go through and I won’t receive an email claiming that it is out of stock or something.

For those of you with an interest in this, here is some of the information on their web site.

Wisconsin Ginseng is known worldwide as the purest, highest quality ginseng. Panax quinquefolius, better known as American Ginseng, is a white root with medicinal properties known to relieve stress, increase stamina and increase resistance to common illnesses such as colds. Wisconsin has the ideal climate and mineral-rich soil conditions for growing the perfect ginseng root. When consumers want the best ginseng, they ask for Wisconsin Ginseng; the world’s finest.

Health Benefits of Wisconsin Ginseng

Pilot Study Shows Promise for Wisconsin Ginseng Reducing Cancer-Related Fatigue

A recent pilot   study at the Mayo Clinic showed positive results for cancer patients who used   Wisconsin Ginseng to reduce cancer related fatigue. Patients taking large doses of Wisconsin   Ginseng showed improvements in overall energy levels, reported higher vitality   levels and less interference with activity due to fatigue. They also reported an   improvement in overall mental, physical, spiritual and emotional   well-being.
Click Here to learn more about this study.

Capsules containing 100 percent Genuine Wisconsin Ginseng, as used in the Pilot study, can be sourced by contacting  the Ginseng & Herb Cooperative as follows: (715) 443-3355. Pricing will be available upon request.

Warding Off the Common Cold

In 2005, researchers conducted a study on panax quinquefolius. The study involved 279 volunteers. For four months, some in the group were given placebo and some were given 400 mg of ginseng (panax quinquefolius). The end results showed that only 10 percent of the ginseng takers got two or more colds, compared to 23 percent in the placebo group. The ginseng takers also reported less severe cold symptoms.

Bauer, Jeff    “Research supports the use of ginseng in fighting colds. (Clinical Highlights)(Brief Article).”
RN 69.1 (Jan 2006): 26(1). InfoTrac OneFile. Thomson Gale.  Regis University.  27 Aug. 2006.

Improved Quality of Life for
Breast Cancer Survivors

According to research at Vanderbilt University in Nashville, Tenn., “Ginseng use after cancer diagnosis, particularly current use, was positively associated with quality of life scores, with the strongest effect in the psychological and social well-being domains. Additionally, quality of life improved as cumulative ginseng use increased.”

American Journal of Epidemology (Association of ginseng use with survival and quality of life among breast cancer patients. Am J Epidemiol, 2006; 163(7): 645-653).

Research Shows Reduced Blood Sugar
in Diabetes Paitents

In 2000, researchers administered a randomized, placebo-controlled study. This study, published in Diabetes Care, analyzed ginseng use and its correlation to blood sugar in diabetes patients. Reseearchers found that subjects receiving a 3 gram dose of ginseng had a blood sugar level that was 59.1 percent less than patients receiving the placebo.

Vuksan V, Stavro MP, Sievenpiper JL, Beljan-Zdravkovic U, Leiter LA, Josse RG, Xu Z. Similar postprandial glycemic reductions with escalation of dose and administration time of American Ginseng in Type 2 Diabetes. Diabetes Care 23(9); 1221-1225, 2000.

Peace Like a River
September 13, 2011

After I wrote last night, I was trying to focus on watching one of my favorite shows…Design Star…but kept thinking back to what I said about being at peace with what is happening. I wasn’t sure that I agreed with my own statement and was thinking about writing a retraction. Yes, I am relieved that the procedure is behind me and certainly feel better about that. I am at peace with the fact that this will hopefully show that there is actually no indication of bone metastasis. But, I’m not sure that I am really at peace with the fact that this could just as easily go the other way.

Oddly enough, I woke up about an hour after going to bed with the song Peace Like a River going through my head.  So, there I was, lying there, wondering what in the world peace like a river is anyway. I’m not a scientist, but I believe there is something about ebb and flow of rivers that could apply here. Not sure. But, then I was also reminded of a bible verse that I committed to memory many years ago. Isiah 26:3. When I was in labor with Michelle, so long ago, I was working on getting through it by repeating this verse…”Thou wilt keep him in perfect peace whose mind is stayed on thee.” I repeated it over and over until it became like a mantra…and until I passed out. When I woke up I had been given an injection and could no longer feel anything. This was perfect peace.

So, what is peace anyway? Is it peace like a river or is it perfect peace? Not sure. If it is perfect peace, I probably have to renege on my statement of yesterday. If it is peace like a river, I can probably stand on what I said. Thoughts?

For now, I’ll just get ready and go to work. This waiting is killing me.

Up next (hopefully)…Joy like a Fountain. 🙂

Thank you…
September 12, 2011

I had to take this opportunity to send a big thank you to my awesome friends, family and followers. I took so many thoughts, prayers and well wishes with me to Mercy today…some that even came in at 8AM this morning as I was checking in. A special thank you to my husband for insisting on accompanying me even though I had said it wasn’t necessary. It was really nice having someone there. One of the things that I dislike about this blog is that I sometimes feel like it sounds like it’s all about me. But, it isn’t. And, I really don’t want it to be. People who are out there just beginning a journey like this need to know how important your support team is. They are the ones who lift you up and keep you going….the ones who take a moment to post a comment, send an email, call or whatever to let you know that you are not alone.

I don’t know why this procedure was bothering me so much, but I know it was. I was so tired last night that I went to bed at 9:30 and was still exhausted when the alarm went off this morning. When I got home from the hospital, I slept for several hours until around mid-afternoon when I logged into my computer and spent a couple of hours working from home. I believe that it was more of a mental fatigue than anything.

If you follow this blog, you know that I have undergone countless procedures over these past nearly two years. Many, many procedures. But, most of the time, I have gone into them feeling like it was probably a good thing that they were checking, but with the calm assurance that they were not going to find anything. The only time I remember feeling like things were probably not going to go in my favor was before the thyroid biopsy. And, that one did not go my way. This time I am uncertain. I feel like it could be a coin flip. But, now that it’s over, I am at peace with it. However it turns out, I feel that I will muster the strength to do whatever needs to be done. And, don’t get me wrong. I’m not anticipating bad news. A part of me feels like there is no way. But, I recognize the possibility.

On the Hip Hip Hooray side, they didn’t do an IV this time. It was just an injection directly into the vein. For whatever reason, that is easier for me to deal with. During the long post injection wait, you have to drink constant fluids to start flushing the radioactive whatsis out of your soft tissues and continue doing so for a while after the procedure. Interesting experience.

But, like so many other things, this is now behind me. It’s just the waiting game, which I’ve gotten pretty good at. I’ll keep you posted and, once again, thank you so much for your support.

Later.

The Big Gulp
September 11, 2011

I was reading a book last night. The main character was waiting for the verdict in a lawsuit against him and he called it the “gulp and wait” period. While I don’t find that particularly creative, something about it caught my attention. I can relate to it. In fact, right now I kind of feel like my life has given new meaning to the term, “Big Gulp.” Remember those at 7-11? Don’t know if they still have them or not, but whatever.

Here’s the deal. It’s been hanging over my head for a while, but tomorrow is finally the day that I go for a bone scan. I’ve had PET scans, MUGA scans and think I may have had a CT scan at some point as well. But, in reading, this bone scan thing looks like a slightly bigger deal. Similar, yes, but different. Different how? Well, my orders say to check into Mercy at 8AM. Be injected at 8:30 AM. That is referring, I’m sure, to the radioactive stuff they shoot into you. When you have a MUGA scan, you have to wait for 30 minutes after injection before they can do the scan and the scan probably takes about 15 minutes. When you have a PET scan, you have to sit for an hour after injection before they do the scan, but again, the scan itself takes about 15 – 20 minutes. According to the articles I have been reading, with a bone scan, you have to wait from 2 to 4 hours after injection before they do the scan and then the scan itself takes about an hour. That is an hour of lying on that table without moving. Sounds like a long day. But, it needs to be done and, in spite of my apprehension, I embrace it. It is, of course, the tool that could end up showing that my cancer has returned. However, it is also the tool that will hopefully show instead that there is nothing there. Without going through this, I can’t know that. So, that is the gulp part.

The Big Gulp is what happened last Thursday. I had an appointment with the eye doctor. Several years ago, I was diagnosed with Macular Degeneration. It is the dry kind, so while it’s not a good thing to have, it’s not that terrible either. It was scary at first, but I got over that a long time ago. I just have to make sure to get regular eye exams and eat lots of fruits and vegetables. I had kind of pushed it to the back burner with all of the other things I’ve been going through, so it got by me a bit and it had been over a year since I had seen the eye doctor. But Thursday morning, I went in. He ran me through all of the machines, etc and everything was looking good. He took pictures of the retina and said he could see a few more drusen in my right eye but the left looked the same. Then, the vision exam. He did the right eye first and I was surprised at the amount of difficulty I had reading the lines. I know that I have felt that my vision wasn’t as good as it used to be but didn’t realize how much it had deteriorated. When he checked the left eye, it tested the same as it had the last time I was in. He switched between the two to show me just how much difference there was, even with the stronger correction on the right. But, he said that last time he had noted a very small cataract on the right side and was guessing it had grown, so we would probably have to look at removing it. However, when he checked, he said the cataract had not grown at all. At that point, he didn’t even finish the exam. He said he was very concerned that there might be fluid behind there and that it might have progressed from dry to wet Macular Degeneration. He said he wasn’t even going to prescribe new lenses. He wanted to refer me to a specialist. All I could think about was the possibility of going blind. He called the office right from the exam room and got me set up for October 28. BIG gulp and wait. I haven’t even been able to talk about this let alone write about it.

I listen to people around me making plans for their lives. I hear them planning where they are going to spend the winter, when they’re going to retire, etc, etc. But I feel like my plans always have an “if” in them because I am always in limbo over some diagnosis or procedure. But, then, I realize, that these other people are no different than I am. None of us know what our future holds. It’s just that I’ve lost the innocence of being able to ignore that fact. The ifs are a part of my daily life.

And, another thing I’ve thought about over the past few days is that, just because the eye doctor is concerned about the possible fluid in my eye doesn’t mean that it even exists. Who’s to say that this isn’t just another chemo side effect. Just the other day, I lost a toe nail, compliments of Taxol, a strong chemo drug I was given more than a year ago…the same one that left me with residual neuropathy in my toes and fingers that I still have to this day. And that wasn’t even the strongest drug. Prior to that I had AC chemo which is really powerful. It dried my eyes out so badly I haven’t been able to wear contacts since. So, who’s to say this isn’t just another effect of some of those drugs? Not that I would consider that to be a good thing, but it certainly has to be better than the alternative.

This morning, Pastor John was talking about 9-11. He said something to the effect that what we are dealt in life isn’t what defines us but rather how we deal with what we are dealt. I am trying to apply that not only to what the outcome of these several situations will be but also to how I deal with the fact that I continue to be bombarded with repeated situations like this. I don’t think I can help but worry about these things when they surface. I don’t think I can help but feel a little afraid. But, I think I can manage to not let it overwhelm me and take over my life.

I have weeks of waiting ahead of me again and I can’t change that. It’s definitely a Big Gulp and wait. So, I just have to deal with it. Therefore, I will.

Think of me tomorrow. I HATE IVs. 🙂

Later.

Photos
September 5, 2011

Sorry folks for the technical difficulties. I think it is fixed now so that the photos are posted. What an awesome weekend. Hopefully these photos can give you a taste of what it was.

 

Walking With Wine
September 5, 2011

It was so difficult to walk away from the lake with the sun shining on the water and not a cloud in the sky. But, all good things must come to an end, and I still have lots of memories that make me smile. I have memories in my mind as well as in photos. For instance…walking with wine.

How can I explain this. Several years ago, we noticed that groups of people would go walking down the road, carrying their wine glasses. Who does that? Do you go walking through your neighborhood carrying a glass of wine? You’d probably get arrested. But, they do it at the lake. And Susan long ago decided that we should experience that as well. So, it is now a tradition that we walk with our wine. Last night we walked down to the point with a glass of wine in our hands. It makes me smile right now, just remembering. Every time we meet up at the lake, one of us will say, “We need to walk with our wine.” So funny.

What else makes me smile about the lake? How about Tomato, Onion bagels. Years ago, Susan introduced us to these when we met at the lake. If you’ve never had them, you don’t know what you’re missing. A half bagel, spread with cream cheese, topped with some Vidalia onion, a slice of ripe, home grown tomato and sprinkled with Morton Nature’s Seasoning. SOOO good. We’ve had them for breakfast, for lunch, for snacks…they are really, so good. If you haven’t had them, put it on your bucket list.

And what else makes me smile about the lake?

Seeing Ken relax and stop worrying – sunset boat ride – a stringer of big, fat walleye, the sun shining on the water – the moon shining on the water – the sound of Native American chanting and music on the other side of the lake – sitting in front of a beach fire on a cool evening – experiencing loons feasting on fish for breakfast – listening to the sound of the loons – experiencing a big sky where you can actually see the constellations – a long, peaceful walk on a cool morning – great times with family.

And now, the long Labor Day week-end is over. The Monday madness doesn’t begin until next week. Whatever happens then, we’ll deal with then. For now, we have our memories. Those in photos and those in our heads.

I hope your Labor Day week-end was as great as ours.

Later.

September 3
September 3, 2011

My mother would have been 88 today. Can hardly believe that.

We’re celebrating her life here at the lake with Sue and Ron. Ken and Ron went fishing for awhile and hope to go out again later. Susan and I went for a walk.

Dead snake on the road…wild sun flowers and cat tails as tall as me…the quaint Blue Iris…the quiet, now deserted buildings at the Bible Camp…peace and quiet and nature.

Tonight we will probably have a beach fire.

Good times. Great memories. Pleasant thoughts.

It’s all good.

Later.

The Black Hole
September 1, 2011

Wow.  I received my Cancer Center orders in the mail today. I had a Monday appointment this week, simply because that was the only day that Dr. D. was going to be in the office and he wanted to see me this week. So, what happened? That threw me into the Monday Black Hole for appointments. I hate Monday appointments. It is the worst day of the week that they could schedule me. But that is what I got.

Monday, September 12. Bone scan at Mercy.

Monday, September 19. Cancer Center – meet with research representative to close out Ginseng trial.

Monday, September 26. Exam. Labs. Meet with Dr. D. to go over results of bone scan.

So…not only am I totally engulfed in the Monday Black Hole…I have to wait nearly a month to find out what, if anything, is going on. Not the best news I’ve ever gotten. BUT…

Like I said earlier this week…for now, I am focussing on Labor Day at the Lake. We leave tomorrow and are looking forward to a good time. The rest can wait.

Later.